Our
Mission: Our mission is to find the cure for Rett
Syndrome.
The
Samantha Corpus Foundation's beliefs and purposes are: The belief that the cure for Rett Syndrome is within
ten years.
The belief that the treatments for symptoms of Rett
Syndrome are achievable much sooner.
To support, fund, and accelerate research for the treatment
and cure for Rett Syndrome.
To increase public awareness of Rett Syndrome.
ABOUT
RETT SYNDROME: Rett Syndrome is a debilitating neurological
disorder diagnosed almost exclusively in females. Children
with Rett Syndrome appear to develop normally until
6 to 18 months of age when they enter a period of regression,
losing speech and motor skills. Most develop repetitive
hand movements, irregular breathing patterns, seizures
and extreme motor control problems. Rett leaves its
victims profoundly disabled, requiring maximum assistance
with every aspect of daily living. Though Rett Syndrome
may affect males, few are known to survive pregnancy.
There is no known cure. Our best hope is through research
to understand and develop an effective therapy to find
the cure.
OUR GOAL: Raise money to increase public awareness
of Rett Syndrome, fund research for treatment and, ultimately,
a cure.
OUR
BACKGROUND: Samantha was diagnosed with Rett Syndrome
at age 3 ½. Since this diagnosis, Samantha has
been seeing medical specialists in Houston, Texas at
The Blue Bird Circle Rett Center of Baylor College of
Medicine. Her neurologist diagnosed Samantha as a high
functioning girl with Rett Syndrome. For the most part,
Samantha is seizure free and she developed the hallmark
repetitive hand wringing. Samantha is 8 years old and
lives with her parents John and Kathy, and her two brothers,
Julian (11) and Jacob (6), in Alamo. She is an active
and very social little girl who can run, skip and jump.
She is in the 3rd Grade and attends a special education
class at Montair Elementary School. Samantha loves to
go to school to see her special friends, teachers and
therapists. Her favorite part of school is recess where
she is mainstreamed with 3rd Grade kids. Here she follows
the boys around the playground and likes to listen and
watch the girls sing and dance. Samantha receives physical,
occupational and speech therapy through her school and
also participates in music therapy, dance therapy, special
needs soccer and private speech therapy to increase
the quality of her and our family's lives.
Our
Mission: Our mission is to find the cure for Rett
Syndrome. 
OUR
BACKGROUND: Samantha was diagnosed with Rett Syndrome
at age 3 ½. Since this diagnosis, Samantha has
been seeing medical specialists in Houston, Texas at
The Blue Bird Circle Rett Center of Baylor College of
Medicine. Her neurologist diagnosed Samantha as a high
functioning girl with Rett Syndrome. For the most part,
Samantha is seizure free and she developed the hallmark
repetitive hand wringing. Samantha is 8 years old and
lives with her parents John and Kathy, and her two brothers,
Julian (11) and Jacob (6), in Alamo. She is an active
and very social little girl who can run, skip and jump.
She is in the 3rd Grade and attends a special education
class at Montair Elementary School. Samantha loves to
go to school to see her special friends, teachers and
therapists. Her favorite part of school is recess where
she is mainstreamed with 3rd Grade kids. Here she follows
the boys around the playground and likes to listen and
watch the girls sing and dance. Samantha receives physical,
occupational and speech therapy through her school and
also participates in music therapy, dance therapy, special
needs soccer and private speech therapy to increase
the quality of her and our family's lives.